@Renee_Slay
Renee Slay
@Renee_Slay · 4:59

#GiveATalk - Rare, Progressive, and Incurable - Minieres Disease

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However, what I'm seeing is incorrect. My brain is seeing it one way and the truth is another. I know that's kind of hard to wrap your head around. It's hard to explain as well. But I run into things a lot and I run into things while I'm seeing them, as if I'm not going to. I have some examples of some of the problems with the brain getting the messages to my body and vice versa

#GiveATalk #minieresdisease #minieresdisease #raredisease #health

@Renee_Slay
Renee Slay
@Renee_Slay · 4:39
That has been followed by me trying to, I guess, force the words out, because it's like, you know what you're trying to say. You feel like it's making it to your mouth, but your mouth comes open and nothing happens. You might make sound, but no words. I've also just had this very tired sensation, and the humidity here really does affect me. So if I'm having that tired sensation, I'm just tired for days with no reason
@rocio
Rocío (Ro) Christensen
@rocio · 0:21
Hi, Renee. Just wanted to thank you for spreading the word about this and sharing. I had no idea, but yeah, it sounds like a lot. So I appreciate you coming in with a lot of details and with your personal experiences. This was really, really informative
@Renee_Slay
Renee Slay
@Renee_Slay · 0:21
I want to thank you so much for taking the time to listen to it. It is a lot, but I'm going to make it through it, and a lot of other people are too. And I'm glad I'm putting some awareness out there. I appreciate you again for just taking the time to not only listen to it, but to reply. That means a lot to me. Thank you so much
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